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| The Mowat-Wilson
Syndrome Syndrome
Support Group was
established in March
2005, Since then we
have had a lot of
contact from
family's with Mowat-Wilson
Syndrome children,
people from the
medical profession &
education staff from
all over the world. |
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1. To offer support to other families affected by Mowat-Wilson Syndrome.
2. To raise awareness of Mowat-Wilson Syndrome with professional workers and other interested individuals.
3. To raise awareness of the Mowat-Wilson Syndrome Support Group. |
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Hi Everyone,
If you have a
Mowat-Wilson
Syndrome Profile
with us that you
would like to
update , please
email us. Please
use the email
address in the
contact tab.
Also If you
would like to
add a new
profile please
email us.
If anyone had
any new info or
ideas for the
Website and
group please get
in touch. I hope
all is well with
everyone.
»
Click here for our
News Archive |
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Toby was born on 26/12/04 following a normal pregnancy. He is our third child, with an older brother and sister. Within a few hours of the birth it became clear that Toby was having difficulty breathing. A heart murmur was detected and when his condition continued to deteriorate he was transferred from our local hospital to Southampton Paediatric Intensive Care Unit.
Toby had not yet ‘poohed’ spontaneously, so within a few hours of being at Southampton was diagnosed with Hirschsprungs Disease (long section). It transpired that his distended stomach was the cause of the respiration difficulties and 8 days after birth was given an Ileostomy.
» Read More About Toby and other families affected by Mowat-Wilson Syndrome in our Patient Profiles section
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